Researchers at Mount Sinai in Toronto are seeking to interview community-dwelling people living with dementia and caregivers, across Ontario.
This study aims to understand how dementia care is being incorporated into Ontario Health Teams (OHTs), which are groups of healthcare providers working together to improve patient care. By listening to the thoughts and experiences of different people involved in dementia care, such as healthcare workers, caregivers, and patients, we hope to identify what is working well and what needs to be improved. Ultimately, we want to find ways to make dementia care within OHTs better, so that individuals living with dementia can receive the support they need to live well.
If this is of interest to you, please contact Chelsey at ChelseyDas.Neves@sinaihealth.ca
Macaulee Cassaday, a producer at The Best Part, a Toronto-based production company is currently producing the second season of our short doc series "After Caregiving." The series tells the stories of former unpaid caregivers and their experience after their caregiving duties end.
Series synopsis:
Whether it is due to recovery, transfer of care or death, at some point, caregiving comes to an end. "After Caregiving" explores the challenges that come with navigating this transition and aims to shine a light and provide guidance to others in similar situations.
Our Process:
Each episode will be guided by the stories shared by our former caregivers. We will shape each episode with them, ensuring their stories are portrayed with the utmost respect and accuracy. We want to capture the essence of their experiences while also finding common threads that can resonate universally with caregivers. Each storyteller will participate in a pre-interview with our director (Saffron Cassaday), in order to be given ample time to consider and shape the story they want to tell. Storytellers may choose to remain anonymous through this process.
You can watch season one here: https://storiesforcaregivers.com/series/after-caregiving/
If you are interested in telling your story, please email Macaulee at macauleecassaday@gmail.com
"After Caregiving" is made possible through the support of Telus Fund and Stories for Caregiving
Caregivers play a critical role in promoting the well-being of individuals with psychosis and supporting their journey towards recovery. Yet to date, limited research has focused on the well-being of the caregivers themselves. To explore this, we are seeking caregivers of individuals with a psychotic disorder to complete a 30-minute online survey.
Who is eligible: Participants must have provided care for someone with a schizophrenia spectrum or psychotic disorder, be English-speaking, be 18 years of age or older, and have access to a device connected to the internet.
The study: Our study consists of an online questionnaire, which requires participants to respond to various statements related to their general outlook on life. The study is expected to take approximately 30 minutes to complete.
What is the benefit? By participating in this study, you will help us learn more about caregiver perspectives, which may be used to inform caregiver support in the future.
This study has been reviewed for ethical compliance by the Queen’s University General Research Ethics Board.
Here is the link to the survey: https://queensu.qualtrics.com/jfe/form/SV_71HGVnKY4nhChcG
Please direct any questions to cpdlab@queensu.ca. Thank you for taking the time to participate in our research!
